Betsy Pilon is the Executive Director of Hope for HIE, the premiere global nonprofit patient advocacy and support organization dedicated to improving the quality of life for children and families impacted by neonatal and pediatric-acquired Hypoxic Ischemic Encephalopathy through awareness, advocacy, education, research and support. Hope for HIE connects over 15,000 families, researchers, clinicians, and the greater community, worldwide, through a comprehensive network.

She is based out of Detroit, Michigan, and is an accomplished speaker, writer, advocate, and connector with a background in marketing and corporate communication in healthcare, education and automotive. She is involved in several neonatal and neurology-related workgroups, task forces, and committees elevating the lived experiences of the HIE community through patient advocacy and research.