Betsy Pilon is the President of Hope for HIE, a global nonprofit dedicated to awareness, education and support for neonatal and pediatric acquired hypoxic ischemic encephalopathy. Hope for HIE serves over 5,000 families worldwide, through a comprehensive network. She works full-time as the Director of Public Relations for Eton Academy. Eton is a private school in Birmingham, Michigan, serving students who learn differently.
After her own son, Max, was born in 2012 with HIE, she could not find any parent-focused resources on HIE. Eventually, she found a small group of families gathering on social media. Working with the existing group, she led the efforts to start the grassroots nonprofit foundation in 2013 to ensure no family faces HIE alone. As a result, Facebook recognized her in 2019 for building community with Hope for HIE.
She is passionate about neurodevelopment, early intervention, parent education, and building patient and family-centered care and partnerships. She advocates for improving communication among providers, patients, and families, positively impacting outcomes in healthcare and education.
With a career in marketing and communication spanning automotive, healthcare and education, she brings her community building skills to help grow the Newborn Brain Society serving on the Board of Directors and leading the Communication and Networking Committee.